This is Beth’s mum and I’m writing on behalf of Beth to let you know what’s been going on.
She doped up to the eyeballs on opiates and is pretty incoherent. She has asked me to pen something to fill you in on the last few months.
Since the summer her health has been steadily declining and the infection we all thought she had beaten has reared its ugly head once again. She managed a fabulous holiday to Sicily in July but since then life has not been so good and an attempted trip to Iceland was cut short due to excruciating pain.
Beth has today been admitted back into Stanmore hospital to have the metalwork removed from her spine. This is the only way they can truly hope to eradicate the infection once and for all. It is exceptionally difficult to clear infections when the metalwork is colonised as it has no blood supply and therefore antibiotics really can’t get to the area they need to get to.
Tomorrow she shall be wheeled into the operating theatre with five consultant surgeons and two anaesthetists to once again open her up front and back. This operation is uncharted territory for all of us as Beth is now so complicated no one can predict what will happen.
This operation may be done in one or two stages, she may have muscle flap surgery performed or she may not. This surgery is not without risk and we’re all pretty scared to be honest, however it has to be done. There is no choice as effective antibiotics are running out rapidly and quite frankly she cannot go on like this.
Her pain is now unmanageable and I have to put her to bed most nights as she’s too confused and tired to be independent and safe. Sepsis is just waiting around the corner now and Beth’s already had two admissions since June and a blood transfusion. This doesn’t sound a lot but this will only get worse with time. Eventually she will become too sick for surgery and the antibiotics stop working.
So tomorrow sees more surgery, more blood transfusions, more pain and more fear. We have been warned that the first few days are going to be very rocky and sepsis is a real risk. She will likely be in itu for at least a week and to be prepared for a hospital admission from between two weeks to two months.
That’s about it folks. It’s crappy and scary but she couldn’t be in better hands. The surgeons involved have planned for this surgery to the nth degree. Microbiology have swabbed her back so many times they have a carefully laid out plan for intra operative and post operative antibiotic cover. They are taking no chances. I am trusting these people with my daughters life and I know they will absolutely do everything within their power to keep her safe.
We will try and update everyone when we can however it can be very difficult to reply to everyone. If you do message please know we appreciate every single one of them. If you don’t hear back from us please rest assured that it helps to know we’re in your thoughts. There will be very scary moments over the next few days and those messages often come just when we need them most.
Thank you everyone for your continued support.
ps: Beth still has her glorious sense of humour though and has asked me tell you all that she should be praised right now. You may wonder why she deserved this!
Well, she just restrained herself from punching a doctor in the nose when he uttered the immortal words, “Everything happens for a reason!”